Wednesday, February 25, 2015

18 Months of RA

It's been about 18 months since I was diagnosed with Rheumatoid Disease, give or take a day. It's been 18 months since I started a gluten free more natural lifestyle including my food.
Today was the day most Rheumatics wait to her. "Your bloodwork is great and the RA looks to be dormant." One of those days I am glad I homeschool because we went out for a celebratory brunch at the new Pop Shop. I am off of the methotrexate. I still am taking Humira but am switching to self injecting. Those automatic pens are not fun. I would rather do it myself. I hear it is less painful too, I will definitely prefer doing injections myself.
I swear by Tart Cherry Juice. I've blogged about it and I make sure I drink it twice daily. It is a proven inflammation fighter. I add it to my smoothies since I'm not a cherry person. Never have been. I was just reading an article that professional athletes are starting to drink it to help their bodies recover. They are having less pain.
I'm still taking the juice plus daily.
My osteoarthritis seems to be rearing it's ugly head. The SynVisc shots are helping tremendously in my right knee. What I thought was another meniscus tear seems to be osteoarthritis. My rheumatologist was right. My left will have to be done again soon but hopefully Blue Cross Blue Shield will again approve my grievance. But for now the cortisone seems to be helping.
In honor of my news today, I registered for my first USTA League tennis play.

So for now, my job is to stay healthy and maintain. Stay the course so to speak. While I know things are good today, I realize how quickly this disease can rear it's ugly head. But it is not this day.

Wait, no Brusing

A week ago I was put on a water pill. In retrospect I should have known I was retaining water. I also started to use the compression socks that was suggested by both doctors (rheumatologist and family doctor). I realized on Tuesday that I didn't bruise from my shot like I normally did. I would bruise regardless of icing. Coincidence, maybe? Definitely something worth looking into.

Thursday, February 19, 2015


I think any person with this less than fun disease would think we have our share of issues, lets leave it at that.
Well, despite rolling along, controlling my flares, playing some awesome tennis, I've noticed something that used to happen with my dad, "pooling." Hind sight is truly 20/20 so I will say this has been happening since the summer, I just read things incorrectly. I remember sitting on the beach watching the US Open and thinking "why is my foot three times the size and it's not hurting."

So edema, basically it's your body retaining water. I saw it before in my dad who had horrible heart problems towards the end of his life. I remember pushing on the skin on his legs and there being a indent (also known as pooling0. I noticed I was doing the same thing. Not as extreme, but definitely the same. I'm glad I brought it up at my appointment. There's totally an advantage to being prepared for your doctors visits. I have a little book I write things down in. Usually at my appointment I cannot remember or I get distracted. I'm very glad I brought that up. I wasn't expecting the echocardiogram but understand the precaution. The second I left my doctors I was on the phone looking it up. I learned many of the meds I am on can cause this Meloxicam, Prednisone, Humira, even the advil since it's a NSAID. After a perfect bp reading today I am less freaked out about the echo.

A quick visit to my family doctor today and I have a water pill and some instructions. I immediately looked up some natural remedies. I started to drink citrus water today. Water with orange and lemon slices. I have to tell you, it seems to be effective. Tomorrow will be day one of the water pill. Hopefully this resolves itself quickly.

Wednesday, February 11, 2015

Rolling Along. An update with More Good News

Visited my doctor today to start my series of SynVisc injections in my knee. I thought we would be doing both but we ended up just picking the right knee. This is all osteoarthritis related. I have to say I am very nervous. It's very hard to tell but I thought last time I flared after every injection. Since I'm playing in league (tennis) I really hope that it was the season I was in (the aftermath of my fall). I am going to start a low dose of prednisone just to be say. I do have a clinic to play in on Saturday, hoping I make it.

On another note, I am taking another step down with my methotrexate injections. I am beyond thrilled about that. I started injecting .08ml every Sunday since May of last year. Nine months later I will only be injecting .04ml. I feel great. I'm ready to step down.

I've been very good about my diet and taking all of my supplements. Still cannot find a place to purchase Tripterygium Wilfordii. I am not done trying.

For you rheumatics out there.....keep fighting. When I remember where I was a year ago I am just so grateful! Read and learn, keep looking for the combination that will work for you! And always remember you are "Rheumatoid Tough."